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Mindfulness course for people living with dementia

I’m running a mindfulness training course for people living with mild to moderate dementia. I’m working with a small group of people with dementia to devise and adapt the course. It’s important to stick to an established evidence-based approach to teaching mindfulness, but simple things like visualising some of the concepts or allowing more time in sessions, may make the course more accessible.

The taster session is on Monday 6 July at 11am, and the eight-week course starts the following Monday. The taster session and the course are both free. There is limited availability on the course. Book your place for the orientation / taster session here.

What is mindfulness?

So what is mindfulness? I like this definition from mindful.org. “Mindfulness is the basic human ability to be fully present, aware of where we are and what we’re doing, and not overly reactive or overwhelmed by what’s going on around us. Mindfulness is a quality that every human being already possesses, it’s not something you have to conjure up, you just have to learn how to access it.”

Why mindfulness for people with dementia?

So how might mindfulness help people living with dementia? According to Alzheimer’s Society it’s common for people with dementia to experience anxiety and depression. An increasing body of evidence proves that mindfulness can help to reduce significant mental health issues. My mother who had vascular dementia suffered bouts of intense anxiety. She also experienced such low moods that on occasion she was put on suicide watch. To help mum feel more settled and calm, I led her in some simple mindfulness practices like the body scan. I also regularly encouraged mum to tune into the present moment by suggesting we pause and listen to the sounds of birds or the waves of the sea, look at a flower, tree or view, and feel the breeze or sun on our faces.

Using our senses gives us the opportunity to experience life in the present moment. It also creates a break from the endless stream of worry about what happens next, or endless rumination about the past. Learning to be in the present moment can be an antidote to some of the rumination and worry.

However, mindfulness isn’t about avoiding difficulties. Instead it’s about bringing more awareness to how our minds work. We learn to recognise thoughts as ‘mental events’, and not necessarily as the truth. We learn to process emotional difficulties through sensations in the body, rather than by reacting automatically. Increased awareness can help us to respond more skillfully to life’s ups and downs.

Many courses and apps claim huge benefits from mindfulness. This can be confusing. How can we know which ones to trust or try? For me personally, I would start with the ones that have the strongest evidence behind them.

Mindfulness Based Cognitive Therapy works

An increasing body of evidence shows that the Mindfulness Based Cognitive Therapy (MBCT) course is effective at reducing depression and anxiety. The eight-week training course was originally developed to help reduce recurrence of depression. Extensive research has shown that this programme is at least as effective as counselling and drugs, without the side effects. It was included in the National Institute for Care and Health Excellence guidance over fifteen years ago. As a result, it is offered as a treatment by the NHS.

Peer reviewed studies now show that mindfulness based interventions are effective at reducing depression, anxiety and chronic pain, and improving working memory, attention span and reaction speeds. You can find out more about the potential benefits of mindfulness training in this extensive, well-referenced, list.

So given these benefits, and the propensity of people living with dementia to experience anxiety and depression, perhaps mindfulness could help. I will consult possible participants to make the course as relevant and accessible, as possible. I will also learn from previous experiences of mindfulness courses for people living with dementia. I aim to build on the small body of experience that has been documented and made available.

The MBCT course mentioned above has been adapted by the Oxford Mindfulness Centre to improve wellbeing for people in the general population in two different courses: MBCT for Life and Finding Peace in a Frantic World. During the consultation with people living with dementia we decideed to use the Finding Peace course with whatever adaptations may be necessary.

Orientation / taster session

However beneficial mindfulness might be for some people, it’s important to acknowledge that it isn’t a panacea, and it’s not right for everybody.

The orientation / taster session is on Monday, 6 July at 11am. This will help potential participants decide if a mindfulness course is right for them. The course will start the following Monday.

If you’re living with mild to moderate dementia and interested in attending the orientation / taster session please book your space here.

4 comments

  1. Reni says:

    Hi there, wow I am so pleased to see this.
    I wrote an adapted course for people with Dementia after I completed my mindfulness teacher training and realised there is very little to nothing like this around in the UK. I was also unhappy to find my local Mental Helth Service wont even assess someone with dementia for their free MBSR!

    We had just got going with the first courtse when the lockdown occured, so we only had 3 sessions together. Id be very interested to hear more about what you are doing!

    Reni

    1. juliapow says:

      Hi Reni

      I’m so pleased to hear from you. Yes, I agree there doesn’t seem much available. I wonder if MBCT would be made available to people living with dementia in my area. The Sussex NHS Partnership Foundation seems good. MBCT is available for people who request in Brighton and Hove but not sure about other areas in the county. I think there may well be more initiatives in the area of mindfulness and dementia in the UK than we realise. It would be great to stay in touch. I’d be very interested to know how your first three sessions went. Did you think of running the rest of your course online? Warm wishes, Julia

  2. Reni says:

    Hi Julia

    I must admit I havent thought of online, many of the people I know are not IT savvy (Im not that great with it myself ) also, they dont have the tech. None of the participants use email, all contacts have been done through phone or thrid party ( carers, friends, relatives).

    1. juliapow says:

      Yes that makes a lot of sense. I’m publicising my course via twitter, and so it’s reaching audiences already fairly technical. Gosh that must be so difficult now that it has stopped mid-way through. Hopefully the participants will continue with the practices they have already started with until you can restart. Let’s stay in touch. Best wishes, Julia

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